International E-publication: Publish Projects, Dissertation, Theses, Books, Souvenir, Conference Proceeding with ISBN.  International E-Bulletin: Information/News regarding: Academics and Research

Participation Restriction in Leprosy Patients - a case study

Author Affiliations

  • 1Department of Home Sciences, University of Kashmir, Srinagar, India
  • 2Department of Home Sciences, University of Kashmir, Srinagar, India
  • 3Department of Home Sciences, University of Kashmir, Srinagar, India
  • 4Government Medical College, Srinagar, India
  • 5Department of Electronics and Instrumentation Technology, University of Kashmir, Srinagar, India

Int. Res. J. Social Sci., Volume 10, Issue (4), Pages 14-19, October,14 (2021)

Abstract

To assess the role of participation restriction and evaluate the prevalence of impairment and the effect of stigma among the people affected by Hansen’s disease in the Kashmir valley. The assessment and evaluation were carried out among 120 leprosy patients suffering from leprosy in the Kashmir valley through adequate participation restriction scales. A comparative questionnaire was designed for two groups, Group I (for government leprosarium, Behral, Lalbazar) and Group 2 (for Kupwara, Ganderbal, Kangan and Budgam districts of Kashmir Valley). The result of the present study reveals that Grade I disability due to leprosy is higher and has the worst association with participation restriction than Grade II. In the study, it has been found that early diagnosis, effective treatment in disease and management of leprosy reaction can prevent participation restriction and are thus essential measures in preventing stigma related to it. The health services can play an important role to fight leprosy patients from the tag of stigma. The findings of the study revealed that participation restriction is directly related to the duration of the disease and has a negative correlation with education. Stigma has a significant role in aggravating the phenomena of participation restriction. Counselling through camping on Leprosy can overcome the myths related to leprosy and can abolish the roots of stigma.

References

  1. WHO-NTD. (2013)., Neglected Tropical Diseases., URL:https://www.who.int/neglected_diseases/ diseases/en/
  2. Hotez, P. J., Bottazzi, M. E., Franco-Paredes, C., Ault, S. K., & Periago, M. R. (2008)., The neglected tropical diseases of Latin America and the Caribbean: A review of disease burden and distribution and a roadmap for control and elimination., PLoS neglected tropical diseases, 2(9), e300.
  3. IHME (2021)., Institute for Health Metrics and Evaluation., www.healthdata.org
  4. Tsutsumi A., Izutsu T., Islam A. M., Maksuda A. N., Kato H. and Wakai S. (2007)., The quality of life, mental health, and perceived stigma of leprosy patients in Bangladesh., Soc Sci Med, 64(12), 2443-53.
  5. Lustosa A. A., Nogueira L. T., Pedrosa J. I., Teles J.B. and Campelo V. (2011)., The impact of leprosy on health-related quality of life., Rev Soc Bras Med Trop, 44(S), 621-6.
  6. Brouwers C., Van Brakel W. H. and Cornielje H. (2011)., Quality of life, perceived stigma, activity and participation of people with leprosy related disabilities in South East Nepal., Disability, CBR and Inclusive Development, 22(1).
  7. Van Brakel W. H. , Sihombing B., Djarir H., Beise K., Kusumawardhani L., Yulihane R., et al. (2012)., Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination., Glob Health Action, 5(1), 183-194.
  8. WHO. (‎2001)‎., International classification of functioning, disability and health: ICF., World Health Organization. https://apps.who.int/iris/handle/10665/42407.
  9. Withington S. G., Joha S., Baird D., Brink M. and Brink J. (2003)., Assessing socio-economic factors in relation to stigmatization, impairment status, and selection for socio-economic rehabilitation: A 1-year cohort of new leprosy cases in north Bangladesh., Lepr Rev, 74(2), 120-32.
  10. Adhikari B., Kaehler N., Chapman R. S., Raut S., Roche P. (2014)., Factors Affecting Perceived Stigma in Leprosy Affected Persons in Western Nepal., PLOS Neglected Tropical Diseases, 8(6), e2940. https://doi.org/10.1371/ journal.pntd.0002940.
  11. Moura, S. H. L., Grossi, M. A. F., Moura, A. C. L., Lehman, L. F., Gomes, A. C., Santos, E. D., ... & Rocha, M. O. C. (2018)., Evaluation of physical impairment and psychosocial disorders in new leprosy patients before and after multidrug therapy in a referral hospital in Belo Horizonte, Minas Gerais, Brazil: The value of rating scales in the assessment of disabilities., Indian Journal of leprosy, 90(1), 47-59.
  12. Wire. (2019)., Leprosy is making a comeback in India, but the govt wants to deny it., URL: https://thewire.in/ health/leprosy-is-making-a-comeback-in-india-but-the-govt -wants-to-deny-it dated 04-Jan-2019.
  13. Van Brakel, W. H., Anderson, A. M., Mutatkar, R. K., Bakirtzief, Z., Nicholls, P. G., Raju, M. S., & Das-Pattanayak, R. K. (2006)., The Participation Scale: measuring a key concept in public health., Disability and rehabilitation, 28(4), 193-203.
  14. Sharma, R. (2012)., Kuppuswamy’s Socioeconomic Status Scale–revision for 2011 and formula for real-time updating., The Indian Journal of Pediatrics, 79(7), 961-962.
  15. Bairwa, M., Rajput, M., & Sachdeva, S. (2013)., Modified Kuppuswamy, Indian journal of community medicine, 38(3), 185–186. https://doi.org/10.4103/0970-0218.116358.
  16. Nandgaonkar, H. P., Mancheril, J., Ebenezer, J., & Samy, A. A. (2002)., Activities of Daily Living (ADL) Assessment: a measure for grading activity limitation in Leprosy patiens., The Indian Journal of Occupational Therapy, 34(3).
  17. Nicholls, P. G., Bakirtzief, Z., Van Brakel, W. H., Das-Pattanaya, R. K., Raju, M. S., Norman, G., & Mutatkar, R. K. (2005)., Risk factors for participation restriction in leprosy and development of a screening tool to identify individuals at risk., Leprosy Review, 76(4), 305-315.
  18. Slim, F. J., van Schie, C. H., Keukenkamp, R., Faber, W. R., & Nollet, F. (2010)., Effects of impairments on activities and participation in people affected by leprosy in The Netherlands., Journal of rehabilitation medicine, 42(6), 536-543.
  19. Singh et al. (2009)., A study on patients using p-scale., Association of participation restriction to socio economical class and grade of deformity.